This is a free webinar in honor of the late Ivory McCuen (1990-2021).
Ivory died homeless of exposure at the age of 30 on 24 Jan. 2021 at 17th & Chambers in Eugene, Oregon. Ivory was a mother of two boys, and a frequent user of the mental health system. Ivory was known for her love of nature, art, and singing.
Live music by folksinger David Rogers
Breezy Smith, Ivory’s sister
Reverend Lois Van Leer, UU Church in Eugene
Eric Jackson, homeless rights activist
Merri “Kitty” Carlisle & David Oaks, co-chairs of UUCE ATF
Chuck Areford, retired mental health worker
Christina Peirsol, NAMI Lane County
Jacek “Jack” Haciak, Oregonians with Lived Experience
Rachel Levy, Rethinking Psychiatry
Rev. Phillip Schulman
ASL Interpreting by Patrick Galasso, Closed Captioning ㏄ Available
Unitarian Universalist Church in Eugene Community (UUCE)
UUCE Accessibility Task Force
CareWorks of Lane County
Oregonians with Lived Experience of the Mental Health System
Comments Off on Inside Story of My Keynote at Peerpocalypse 2020
This Summer 2020, I was one of the four keynoters for the major gathering of hundreds of US mental health consumers and psychiatric survivors, Peerpocalypse. Of course, this time it was on Zoom, and at the bottom you can watch my keynote.
During the keynote I reference three archives I know about. Here is more information and how to get in touch with them:
U. Mass: My late friend, Judi Chamberlin, is widely acknowledged as one of the main leaders of the start of the Mad Movement. The University of Massachusetts in Amherst received her enormous files of Movement material. These have been catalogued, and you can read more about it here: http://scua.library.umass.edu/umarmot/chamberlin-judi-1944-2010/
PSAT: Psychiatric Survivor Archives of Toronto gathered a lot of material, and decided to be independent of the university system. I had not heard much about PSAT for a while, so I tracked down board members and exchanged emails. Apparently, they no longer have their web address they used to have. Board member Lucy Costa emailed me in July 2020 that, “Yes, the archives are absolutely safe and secure.” Because of low resources, COVID-19 and questions about issues such as researching Canada’s Archives Act, there has been a lull. Lucy said all is well. You may email them at email@example.com.
Incredibly, despite our social change movement doing so much work internationally for so long, these are the only three archives I am aware of. Do you know of any others? My friend, Lauren Tenney, has networked about some artifacts via Facebook. I have not yet seen that, thanks Lauren.
Last year, 2019, we lost a giant in our movement, one of my best friends, Janet Foner. Janet was mainly involved in Re-evaluation Counseling, but strictly separate from that, Janet was also active in co-founding and leading MindFreedom International. Her friend, Lauren Spiro, is in both worlds, RC and what they call the “wide world.” Lauren has edited together a tribute, mainly by RCers (and even though I have never joined RC, they have included my tribute as the only one from the “wide world”). You can read and download here: https://docs.google.com/document/d/1hmVpZ0dfm7jkLUIFb20aA-zA41pOmTNftD9ngCdMzMg/edit?usp=sharing
One of my tributes to fallen leaders is David Heine, a filmmaker and Eugene friend who died fairly recently, 17 July 2020. David created hundreds of documentaries, mainly about art. But he also made some documentaries highly critical of the mental health system. For instance, his younger brother was caught up by involuntary psychiatric drugging for decades, and died early as a result. David made this wonderful documentary about their relationship: “Little Brother Big Pharma.” David also made a movie about alternatives called “Care Farms of the Netherlands.”
Shall We Radicals Network Like We Used To?
During the 1970s & 1980s, for about a decade, radical psychiatric survivors used to gather each Summer, usually on a college campus. These events became known as “International Conference for Human Rights and Against Psychiatric Oppression” (ICHRAPO). I attended several of these but missed the last one in Vermont in 1985. A celebrity visited: Yes, the mayor of Burlington at that time was Bernie Sanders and I understand that he visited and spoke briefly at the International Conference! At about that time, the federal government began funding a big annual conference, so unfortunately Vermont included a lot of acrimony because participants split about how to react to the federal conference. That ended the International Conference.
I have called for restarting the International Conference. Now that people are more familiar with Zoom, we could easily hold a virtual gathering. If you are interested, let me know. Plus, we have started a private group on Facebook and I can get you an invite. Email me at firstname.lastname@example.org for more information.
Mad Movement Challenges White Supremacy
Several psychiatric survivor activists, including leading African American women such as Celia Brown and Yvonne Smith, have built a network, Surviving Race: The Intersection of Injustice, Disability, and Human Rights, to challenge systemic racism, including connecting with our Mad Movement. Find the Facebook group here: https://www.facebook.com/groups/364074427086419
Federal Support of Coerced Outpatient Mental Health
In my keynote, I referenced how the big federal mental health agency, Substance Abuse & Mental Health Services Administration (SAMHSA) used to fund a popular annual conference of psychiatric survivors and mental health consumers, called Alternatives. SAMHSA has stopped funding such evens, claiming lack of money.
However, SAMHSA found millions of dollars to help promote outpatient coerced mental health treatment. In 2017, I exchanged emails with SAMHSA staff about this, and I included a link to the 17 (since one was dropped, 16) cities: http://davidwoaks.com/samhsa-involuntary-mental-health
Yes, of course we in the USA will be focusing over the next few weeks on de-selecting the incredibly negative current occupant in the White House. In fact, I have created a Facebook group to promote positive dialogue between Trump opponents and those who may have mistakenly voted for him in the past. We need to talk.
I have given this group a slogan, “Tough Ha!” This is the last laugh for by us. I love acronyms, and my acronym for this is TUFFFFHA, which is Trump Unites Family & Friends For Firing His Arrogance (or Ass). I shortened this acronym to TU4FHA. Please do not join this group if you might ever vote for Trump in the future. But everyone else that can hold a civil dialogue, you are welcome to join here: https://www.facebook.com/groups/751355419041364
More About My Consulting Business, Aciu! Institute
Aciu to Everyone Who Supported Me For This Keynote!
My wonderful and amazing wife, Debra, helped provide a bit of a laugh track and support during my keynote. Stupendous home care worker, Ian, repeated me and gave wise advice. The staff at Peerpocalypse in Portland were amazing, always responsive to my concerns, taking extra steps for closed captioning, and more. I highly recommend this event, both for viewing the dozens of workshops and other keynotes, and joining with them next year. For more info, click here: https://www.mhaoforegon.org/peerpocalypse-main-page
During my keynote and workshop, we had free ASL interpreting by Patrick Galasso, aciu!
Many other folks have helped me prepare and process the keynote. I would especially like to appreciate the editor for Mad In America, Peter Simons. Just knowing this skilled editor was there was helpful in my work on this blog. And of course, Peter and I exchanged a bunch of communication to finish the MIA blog. Aciu, Peter!
Comments Off on 8 Ways I Am Celebrating July 2019 as Mad Pride Month. How will you celebrate next July 2020?
Today is 15 July 2019, and we honor the birthday of the late great Leonard Roy Frank, one of the main psychiatric survivor leaders of our modern era, and a good friend (his photo is on the left). I have blogged about Leonard before, and Mad Pride Month needs to celebrate Leonard: http://davidwoaks.com/my-friend-leonard-roy-frank
Leonard supported grassroots activism wherever you are. Our local group, MindFreedom Oregon, is a state affiliate of the human rights coalition MindFreedom International. We support calling this whole month of July, Mad Pride Month!
You probably did not hear about this call for July becoming Mad Pride Month since we have only told a few folks. It’s not too late for the rest of the month! How have you celebrated this month, perhaps accidentally? Especially, what ideas do you have for next year, July 2020, to celebrate Mad Pride? Do you support making July Mad Pride Month? If so, please contact us, there are many ways to assist this, see Mad Pride Social Media Volunteers below.
Yesterday was Bastille Day, 14 July 2019. One of the reasons July should be Mad Pride Month is that for decades, leaders in the psychiatric survivor movement have used Bastille Day to celebrate the human spirit and oppose psychiatric oppression and tyranny. One of the main activities each year is a three-day camping vigil in front of the New York State mental health agency in Albany. This vigil wrapped up yesterday. For more info about their event, their Facebook link for this vigil is here.
Here are eight ways I am celebrating Mad Pride this July:
Way to go, my good friend Rev. Phil Schulman! He was one of the keynote speakers at the annual Alternatives Conference, which has just been held in DC. Incredibly, people are searching for a video or audio recording of Phil’s speech! Accidents may happen, but I call Phil “The Movement Minister” and getting out his message is a high priority. Hopefully, someone will find a recording of Phil’s keynote. After years of leading congregations, mainly Unitarian Universalist, Phil experienced a serious head injury about a year and a half ago. His resilience, love, and leadership are so very important to our movement.
Opal Network: Here in Oregon, one of the main literary heroes was psychiatric survivor Opal Whiteley. About a decade ago, we created an informal coalition called the Opal Network which has spoken out for the empowerment of local mental health consumers and psychiatric survivors. We meet every time a month has five Tuesdays, about four times a year, so that means our next public gathering will be Tuesday, 30 July 2019. Our theme will be how the arts can support mental and emotional well-being, and psychiatric survivor liberation. Psychiatric survivor Chrissy Peirsol and I plan to host a round table at the downtown Eugene Trauma Healing Project, 11th and Charnelton, at 3:30 pm. We will have a web video Zoom call, so you can participate for free wherever you live. Interested? Please email us at: email@example.com
World’s Biggest Sneeze! A few days ago, several of us in MindFreedom Oregon gave a presentation at a stage in Community Village, as part of the celebration of the 50th Annual Oregon Country Fair (if you’re new to OCF, watch some videos of this wild hippie gathering in the woods here). During our event, we held the World’s Biggest Sneeze! Ah-ah-ah-ah-ah-ah-ah-ah-ah… CHOO! We are allergic to what is called “normality” which actually does not exist! Our household plays a simple game you can join: Whenever we hear the word “normal” on the radio, TV, or conversation, we sneeze! The first to sneeze wins. Try it!
When society is crazy & paralyzed, who are you gonna call? The Mad Pride Movement! Because of the climate crisis, 100% of humanity is clearly part of the Mad Pride Movement. We are all traumatized by the disaster. We all confront the mystery of understanding the universe. Do not wait to understand it all, act now. Those of you in the Eugene, Oregon area, please join me at an Extinction Rebellion potluck and talk on Wednesday, 31 July 2019, 6:30 pm, at our Unitarian Universalist Church. If you are outside the Eugene area, you probably live on Earth and so can take part in this nonviolent Extinction Revolution wherever you are. The Mad Pride Movement celebrates your creative way of thinking & acting. We are the new PC: Positively Crazy!
Mad Pride Social Media Volunteers: To connect with those of you who are curious or supportive of a Mad Pride Month, we at MindFreedom Oregon are creating several social media places. If you would like to assist, and perhaps co-moderate, contact firstname.lastname@example.org. Social media include: Reddit, Twitter, Linkedin, Instagram, Facebook.
Remember Creative Maladjustment Week! For more than a decade, Rev. Martin Luther King, Jr. commented about creative maladjustment over and over. He even said the world was in dire need of an “International Association for the Advancement of Creative Maladjustment.” MindFreedom International produced a guide to celebrate being maladjusted every July 7-14, Creative Maladjustment Week! And of course, this is near the middle of July, now Mad Pride Month.
A State Senator in Oregon Wants to Hear from Psychiatric Survivors, Mental Health Consumers, and Our Allies. My friend, State Senator Floyd Prozanski, pushed for two mental health bills this past session in the Salem, Oregon legislature. We Oregon psychiatric survivors/mental health consumers heard about these proposals and we expressed our deep concern. Thankfully, both bills failed this past session which just ended in Mad Pride Month, July! Yay! Now, I promised Sen. Prozanski that we would provided him with civil input about human rights & choice in mental health. Please email him at: Sen.FloydProzanski@oregonlegislature.gov. Please copy your comments to: email@example.com
Something for Everyone! I know Mad Pride may not be everyone’s cup of tea. I figured out that if a couple conceives today, their baby might be born on 15 April, tax day. This would seem to be a great Normal Shame Day, so that if anyone rejects Mad Pride Day they can always be part of that. If your baby is born on Normal Shame Day, do not worry, this is definitely not normal and your child will be a hero of the Mad Pride Movement!
Your ideas, feedback, jeers, cheers, suggestions, support, strangeness are all welcome in the comment area below, or on my Facebook page. Thanks!