Inside Story of My Keynote at Peerpocalypse 2020

A screenshot of people viewing David Oaks keynote at Peerpocalypse
Some of the hundreds of viewers for the David Oaks keynote at Peerpocalypse 2020.

This Summer 2020, I was one of the four keynoters for the major gathering of hundreds of US mental health consumers and psychiatric survivors, Peerpocalypse. Of course, this time it was on Zoom, and at the bottom you can watch my keynote.

On Mad In America, I am doing a blog about my keynote, which they published Thursday, 8 October: https://www.madinamerica.com/2020/10/world-mad-pride-disability-revolution/

Peerpocalypse has a webpage with links to other keynotes, workshops, videos, slides, etc. from the Summer 2020 event. You can view all these for free here: https://www.mhaoforegon.org/2020-conference-slides

Very Few Mad Pride Movement Archives

During the keynote I reference three archives I know about. Here is more information and how to get in touch with them:

  1. U. Mass: My late friend, Judi Chamberlin, is widely acknowledged as one of the main leaders of the start of the Mad Movement. The University of Massachusetts in Amherst received her enormous files of Movement material. These have been catalogued, and you can read more about it here: http://scua.library.umass.edu/umarmot/chamberlin-judi-1944-2010/
  2. OHSU: After I fell in 2012, I helped MindFreedom International donate 23 linear feet of archives to Oregon Health & Science University. OHSU has been busy cataloguing this, and you can read about the archives here: http://archiveswest.orbiscascade.org/ark:/80444/xv71517/
  3. PSAT: Psychiatric Survivor Archives of Toronto gathered a lot of material, and decided to be independent of the university system. I had not heard much about PSAT for a while, so I tracked down board members and exchanged emails. Apparently, they no longer have their web address they used to have. Board member Lucy Costa emailed me in July 2020 that, “Yes, the archives are absolutely safe and secure.” Because of low resources, COVID-19 and questions about issues such as researching Canada’s Archives Act, there has been a lull. Lucy said all is well. You may email them at psychsurvivorarchives@gmail.com.

Incredibly, despite our social change movement doing so much work internationally for so long, these are the only three archives I am aware of. Do you know of any others? My friend, Lauren Tenney, has networked about some artifacts via Facebook. I have not yet seen that, thanks Lauren.

Mad Movement Fallen Giants Presente!

I bring up professor Bonnie Burstow of Toronto, who died 4 January, 2020. Activist and friend, Don Weitz, created a beautiful tribute for Bonnie on Mad In America here: https://www.madinamerica.com/2020/01/remembering-bonnie-burstow/

Cookie Gant
Cookie Gant: Fallen but presente!

Last year, 2019, we lost a giant in our movement, one of my best friends, Janet Foner. Janet was mainly involved in Re-evaluation Counseling, but strictly separate from that, Janet was also active in co-founding and leading MindFreedom International. Her friend, Lauren Spiro, is in both worlds, RC and what they call the “wide world.” Lauren has edited together a tribute, mainly by RCers (and even though I have never joined RC, they have included my tribute as the only one from the “wide world”). You can read and download here: https://docs.google.com/document/d/1hmVpZ0dfm7jkLUIFb20aA-zA41pOmTNftD9ngCdMzMg/edit?usp=sharing

One of my tributes to fallen leaders is David Heine, a filmmaker and Eugene friend who died fairly recently, 17 July 2020. David created hundreds of documentaries, mainly about art. But he also made some documentaries highly critical of the mental health system. For instance, his younger brother was caught up by involuntary psychiatric drugging for decades, and died early as a result. David made this wonderful documentary about their relationship: “Little Brother Big Pharma.” David also made a movie about alternatives called “Care Farms of the Netherlands.”

Shall We Radicals Network Like We Used To?

During the 1970s & 1980s, for about a decade, radical psychiatric survivors used to gather each Summer, usually on a college campus. These events became known as “International Conference for Human Rights and Against Psychiatric Oppression” (ICHRAPO). I attended several of these but missed the last one in Vermont in 1985. A celebrity visited: Yes, the mayor of Burlington at that time was Bernie Sanders and I understand that he visited and spoke briefly at the International Conference! At about that time, the federal government began funding a big annual conference, so unfortunately Vermont included a lot of acrimony because participants split about how to react to the federal conference. That ended the International Conference.

I have called for restarting the International Conference. Now that people are more familiar with Zoom, we could easily hold a virtual gathering. If you are interested, let me know. Plus, we have started a private group on Facebook and I can get you an invite. Email me at revolution@aciu.info for more information.

Mad Movement Challenges White Supremacy

Yvonne Smith

Several psychiatric survivor activists, including leading African American women such as Celia Brown and Yvonne Smith, have built a network, Surviving Race: The Intersection of Injustice, Disability, and Human Rights, to challenge systemic racism, including connecting with our Mad Movement. Find the Facebook group here: https://www.facebook.com/groups/364074427086419

To provide the background about the disability movement, I highly recommended two new documentaries: Crip Camp is on Netflix. Piss On Pity can be seen by renting it on Vimeo.

Federal Support of Coerced Outpatient Mental Health

In my keynote, I referenced how the big federal mental health agency, Substance Abuse & Mental Health Services Administration (SAMHSA) used to fund a popular annual conference of psychiatric survivors and mental health consumers, called Alternatives. SAMHSA has stopped funding such evens, claiming lack of money.

However, SAMHSA found millions of dollars to help promote outpatient coerced mental health treatment. In 2017, I exchanged emails with SAMHSA staff about this, and I included a link to the 17 (since one was dropped, 16) cities: http://davidwoaks.com/samhsa-involuntary-mental-health

UN Leader Calls for “Revolution” in Mental Health

During my keynote, I quoted Special Rapporteur on the Right to Health, at the UN Human Rights Council, Lithuanian Psychiatrist Dainius Pūras, who in 2017 called for a “revolution” because of systemic problems in the mental health system. You can read more here: https://www.ohchr.org/en/NewsEvents/Pages/DisplayNews.aspx?NewsID=21689&LangID=E

Fun On Facebook: Tough Ha! The Last Laugh

Yes, of course we in the USA will be focusing over the next few weeks on de-selecting the incredibly negative current occupant in the White House. In fact, I have created a Facebook group to promote positive dialogue between Trump opponents and those who may have mistakenly voted for him in the past. We need to talk.

I have given this group a slogan, “Tough Ha!” This is the last laugh for by us. I love acronyms, and my acronym for this is TUFFFFHA, which is Trump Unites Family & Friends For Firing His Arrogance (or Ass). I shortened this acronym to TU4FHA. Please do not join this group if you might ever vote for Trump in the future. But everyone else that can hold a civil dialogue, you are welcome to join here: https://www.facebook.com/groups/751355419041364

More About My Consulting Business, Aciu! Institute

During my keynote, I mention Aciu! Institute and some of our videos. I have just blogged about on our Aciu! Institute site. You can go to this link to connect to a whole bunch of videos: https://aciu.info/2020/09/23/david-oaks-peer-keynote-videos/

Peerpocalypse 2020 Workshops & Keynotes

If you missed the Peerpocalypse event, or wish to view any of the workshops or keynotes, they are now all available online, totally free.

Four of us gave keynotes and here is a YouTube playlist of all four.

Below is an embedded video of my keynote if you would like to watch it right here, about half an hour:

Please click CC above in the lower right of the video then “English” for
Closed Captioning to understand my disabled voice more clearly.
(If you’ve already started viewing, hover your cursor over the video.)

I already provided a link for the YouTube playlist of the four keynotes for Peerpocalypse 2020. These plus all the dozens of workshops are available free on the Peerpocalypse website, here: https://www.mhaoforegon.org/2020-conference-slides

Aciu to Everyone Who Supported Me For This Keynote!

My wonderful and amazing wife, Debra, helped provide a bit of a laugh track and support during my keynote. Stupendous home care worker, Ian, repeated me and gave wise advice. The staff at Peerpocalypse in Portland were amazing, always responsive to my concerns, taking extra steps for closed captioning, and more. I highly recommend this event, both for viewing the dozens of workshops and other keynotes, and joining with them next year. For more info, click here: https://www.mhaoforegon.org/peerpocalypse-main-page

During my keynote and workshop, we had free ASL interpreting by Patrick Galasso, aciu!

Many other folks have helped me prepare and process the keynote. I would especially like to appreciate the editor for Mad In America, Peter Simons. Just knowing this skilled editor was there was helpful in my work on this blog. And of course, Peter and I exchanged a bunch of communication to finish the MIA blog. Aciu, Peter!

Your Feedback Is Very Much Encouraged & Welcome

On my Mad In America blog, I ended with several ways folks can support the “virality” of my keynote.

In addition, of course, people can comment below on my personal blog. Mad In America gets far more comments on their blog entries and their Facebook. I will also try to watch there and respond.

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8 Ways I Am Celebrating July 2019 as Mad Pride Month. How will you celebrate next July 2020?

Leonard Roy Frank
Leonard Roy Frank, one of the main heroes of the psychiatric survivor movement! Mad Pride! Leonard especially fought electroschock.

Today is 15 July 2019, and we honor the birthday of the late great Leonard Roy Frank, one of the main psychiatric survivor leaders of our modern era, and a good friend (his photo is on the left). I have blogged about Leonard before, and Mad Pride Month needs to celebrate Leonard: http://davidwoaks.com/my-friend-leonard-roy-frank

Leonard supported grassroots activism wherever you are. Our local group, MindFreedom Oregon, is a state affiliate of the human rights coalition MindFreedom International. We support calling this whole month of July, Mad Pride Month!

You probably did not hear about this call for July becoming Mad Pride Month since we have only told a few folks. It’s not too late for the rest of the month! How have you celebrated this month, perhaps accidentally? Especially, what ideas do you have for next year, July 2020, to celebrate Mad Pride? Do you support making July Mad Pride Month? If so, please contact us, there are many ways to assist this, see Mad Pride Social Media Volunteers below.

Yesterday was Bastille Day, 14 July 2019. One of the reasons July should be Mad Pride Month is that for decades, leaders in the psychiatric survivor movement have used Bastille Day to celebrate the human spirit and oppose psychiatric oppression and tyranny. One of the main activities each year is a three-day camping vigil in front of the New York State mental health agency in Albany. This vigil wrapped up yesterday. For more info about their event, their Facebook link for this vigil is here.

Here are eight ways I am celebrating Mad Pride this July:

  1. Way to go, my good friend Rev. Phil Schulman! He was one of the keynote speakers at the annual Alternatives Conference, which has just been held in DC. Incredibly, people are searching for a video or audio recording of Phil’s speech! Accidents may happen, but I call Phil “The Movement Minister” and getting out his message is a high priority. Hopefully, someone will find a recording of Phil’s keynote. After years of leading congregations, mainly Unitarian Universalist, Phil experienced a serious head injury about a year and a half ago. His resilience, love, and leadership are so very important to our movement.
  2. Opal Network: Here in Oregon, one of the main literary heroes was psychiatric survivor Opal Whiteley. About a decade ago, we created an informal coalition called the Opal Network which has spoken out for the empowerment of local mental health consumers and psychiatric survivors. We meet every time a month has five Tuesdays, about four times a year, so that means our next public gathering will be Tuesday, 30 July 2019. Our theme will be how the arts can support mental and emotional well-being, and psychiatric survivor liberation. Psychiatric survivor Chrissy Peirsol and I plan to host a round table at the downtown Eugene Trauma Healing Project, 11th and Charnelton, at 3:30 pm. We will have a web video Zoom call, so you can participate for free wherever you live. Interested? Please email us at: opalnetwork@protonmail.com
  3. World’s Biggest Sneeze! A few days ago, several of us in MindFreedom Oregon gave a presentation at a stage in Community Village, as part of the celebration of the 50th Annual Oregon Country Fair (if you’re new to OCF, watch some videos of this wild hippie gathering in the woods here). During our event, we held the World’s Biggest Sneeze! Ah-ah-ah-ah-ah-ah-ah-ah-ah… CHOO! We are allergic to what is called “normality” which actually does not exist! Our household plays a simple game you can join: Whenever we hear the word “normal” on the radio, TV, or conversation, we sneeze! The first to sneeze wins. Try it!
  4. When society is crazy & paralyzed, who are you gonna call? The Mad Pride Movement! Because of the climate crisis, 100% of humanity is clearly part of the Mad Pride Movement. We are all traumatized by the disaster. We all confront the mystery of understanding the universe. Do not wait to understand it all, act now. Those of you in the Eugene, Oregon area, please join me at an Extinction Rebellion potluck and talk on Wednesday, 31 July 2019, 6:30 pm, at our Unitarian Universalist Church. If you are outside the Eugene area, you probably live on Earth and so can take part in this nonviolent Extinction Revolution wherever you are. The Mad Pride Movement celebrates your creative way of thinking & acting. We are the new PC: Positively Crazy!
  5. Mad Pride Social Media Volunteers: To connect with those of you who are curious or supportive of a Mad Pride Month, we at MindFreedom Oregon are creating several social media places. If you would like to assist, and perhaps co-moderate, contact mf-oregon@aciu.info. Social media include: Reddit, Twitter, Linkedin, Instagram, Facebook.
  6. Remember Creative Maladjustment Week! For more than a decade, Rev. Martin Luther King, Jr. commented about creative maladjustment over and over. He even said the world was in dire need of an “International Association for the Advancement of Creative Maladjustment.” MindFreedom International produced a guide to celebrate being maladjusted every July 7-14, Creative Maladjustment Week! And of course, this is near the middle of July, now Mad Pride Month.
  7. A State Senator in Oregon Wants to Hear from Psychiatric Survivors, Mental Health Consumers, and Our Allies. My friend, State Senator Floyd Prozanski, pushed for two mental health bills this past session in the Salem, Oregon legislature. We Oregon psychiatric survivors/mental health consumers heard about these proposals and we expressed our deep concern. Thankfully, both bills failed this past session which just ended in Mad Pride Month, July! Yay! Now, I promised Sen. Prozanski that we would provided him with civil input about human rights & choice in mental health. Please email him at: Sen.FloydProzanski@oregonlegislature.gov. Please copy your comments to: mf-oregon@aciu.info
  8. Something for Everyone! I know Mad Pride may not be everyone’s cup of tea. I figured out that if a couple conceives today, their baby might be born on 15 April, tax day. This would seem to be a great Normal Shame Day, so that if anyone rejects Mad Pride Day they can always be part of that. If your baby is born on Normal Shame Day, do not worry, this is definitely not normal and your child will be a hero of the Mad Pride Movement!

Your ideas, feedback, jeers, cheers, suggestions, support, strangeness are all welcome in the comment area below, or on my Facebook page. Thanks!

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Some Mental Health Justice Resources Related to Unitarian Universalism

Below please find a few links for people who are active with Unitarian Universalist churches and the topic of mental health justice.

Please note this list is not officially connected to any church. However, I am a UU member who has worked for 40 years on mental health activism. 

These resources are an ongoing project, so check back later and there may some changes.

uu-mental-health-justice-graphicFacebook group on the topic of UU Mental Health Justice:

https://www.facebook.com/groups/uumentalhealthjustice/

One of the main pioneers to work on mental health issues is the UU minister Rev. Barbara Meyers. You can find information about her and her many projects here:

http://www.mpuuc.org/mentalhealth/mentalintro.html

One of the main UU ministers to embrace the mental health justice movement is Rev. Phil Schulman. You can find him on Facebook here:

https://www.facebook.com/RebShaman?fref=ts

One of his projects is Advocates for Humanity, which you can find on Facebook here:

https://www.facebook.com/AdvocatesForHumanity

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