Oregon Action Alert, June 2021:

Prevent Wasting Money on Misinformed, Coercive Mental Health Overreach!

The below alert is especially for Oregonians who support human rights and alternatives in mental health. However, even if you live outside of Oregon, your voice will help show legislators they need to urgently stop this flawed bill.

Oregon State Senator Floyd Prozanski has had a Work Group on mental health issues. Within this Work Group, the Subcommittee of Oregonians with Lived Experience of the Mental Health System OPPOSES a harmful bill sponsored by Sen. Prozanski: 

SB187 redefines “dangerous” as a legal concept instead of a clinical concept, and increases the number of Oregonians likely to be subject to civil commitment restrictions of their civil rights.

Even though Sen. Prozanski’s Work Group never addressed or voted on SB187; Even though the Subcommittee of Oregonians with Lived Experience opposed SB187; And even though most public testimony was against SB187… Unfortunately, Sen. Prozanski pushed his bill. 

TAKE ACTION:

SB187 is now in the Oregon Joint Committee On Ways and Means. As a joint committee, it has legislators from both the House and the Senate. Please refer to this list of legislators in the Joint Committee On Ways and Means, and if you see any of them that represent you, please write to them and express your opposition to SB187!

Even if your Oregon Senator or Representative are NOT on the Joint Committee, email them and ask them to oppose the bill before the Joint Committee

You can also email to the six leaders of the Joint Committee, the co-chairs and co-vice chairs. You will find their email addresses in the sample letter below. 

For a sample model letter opposing SB187, click here.

To prepare your emails, you can read our one-page Brief Talking Points to Stop SB187

For a longer five-page analysis of the problems with SB187, click here.

To follow developments of this & other related bills, be sure to sign-up for email alerts from our partners at MindFreedom Oregon. Email: mf-oregon@aciu.info. (Version 20210526)

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Cripping the Red Carpet: Disability Documentary May Win Oscar, Sunday, April 25

Image from the movie Crip Camp, a Disability Revolution: Young African American man pushing young white man in wheelchair while holding guitar.
From a poster for the movie Crip Camp, a Disability Revolution

I loved the documentary about the disability movement, Crip Camp, on Netflix. It is one of the flicks nominated for an Academy Award. I hope you join me watching & cheering during this free Zoom webinar, info from the organizers:

CRIPPING THE RED CARPET on Sunday, April 25th at 3 pm PT, 6 pm ET.

Celebrate Crip Camp’s Oscar nomination for Best Documentary Feature! A historic moment for the disability community, Crip Camp at the Oscars will truly be a night to remember.

The Paul K. Longmore Institute and the Crip Camp Impact campaign are teaming up to kick off Oscar night with a celebration of disability community and culture. We’ll learn what the stars of the the film Crip Camp are thinking about the film’s Oscar nomination, have a red carpet dance party featuring all of you in your crip couture* (whether that’s rocking your best sweatpants and hoodie or busting out your Hollywood glam – we LOVE it all!), and enjoy a lot of laughs with our two event emcees, comedians Maysoon Zayid and Nina G.

Register: https://tinyurl.com/crippingtheredcarpet 

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Virtual Vigil Public Service Announcement: Honor Ivory McCuen

Sunday, 18 April 2021, 5 pm PT

At that time click: tinyurl.com/ivorypeer

This is a free webinar in honor of the late Ivory McCuen (1990-2021).

Ivory died homeless of exposure at the age of 30 on 24 Jan. 2021 at 17th & Chambers in Eugene, Oregon. Ivory was a mother of two boys, and a frequent user of the mental health system. Ivory was known for her love of nature, art, and singing.

Live music by folksinger David Rogers

Speakers include:

  • Breezy Smith, Ivory’s sister
  • Reverend Lois Van Leer, UU Church in Eugene
  • Eric Jackson, homeless rights activist
  • Merri “Kitty” Carlisle & David Oaks, co-chairs of UUCE ATF
  • Chuck Areford, retired mental health worker
  • Christina Peirsol, NAMI Lane County
  • Jacek “Jack” Haciak, Oregonians with Lived Experience
  • Rachel Levy, Rethinking Psychiatry
  • Rev. Phillip Schulman

ASL Interpreting by Patrick Galasso, Closed Captioning ㏄ Available

Co-sponsored by:

  • Unitarian Universalist Church in Eugene Community (UUCE)
  • UUCE Accessibility Task Force
  • CareWorks of Lane County
  • MindFreedom International
  • MindFreedom Oregon
  • Oregonians with Lived Experience of the Mental Health System
  • Extinction Rebellion Justice Eugene
  • Planet versus Pentagon
  • Rethinking Psychiatry
  • Aciu! Institute

Ivory’s obituary in Eugene Weekly: tinyurl.com/ivory-eugene

Donations in honor of Ivory can be made to White Bird’s crisis team, CAHOOTS.

For more information, to co-sponsor, or to reach organizers: ivorypeer@gmail.com or 541-914-1469

For the Facebook event page for this Virtual Vigil, click here.

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Unitarian Universalist Online Access Forum: Sunday 31 January 2021

Updated: Now watch this webinar live, either on Zoom or Facebook, tomorrow, Sunday 31 Jan 2021:

Free Public Disability Webinar  

Disability wheelchair with Unitarian Universalist chalice
UU Values & Disability

Unitarian Universalist Online Access Forum

Mental Disability, Mental Health & UU Values

TOMORROW Sunday, January 31, 2021

5:00 pm – 6:00 pm PST

Watch live on Zoom: tinyurl.com/uu-mental-disability

Or watch live on Facebook: facebook.com/UUEugene

All are welcome: Mental disability, such as traumatic brain injury (TBI), brings special challenges. How do mental disability and mental health relate to the UU value of dignity & respect for all? A dialogue between Leslie Relle (TBI survivor) and David Oaks (psychiatric survivor), both UUCE members.

Special Guest: Rev. Phillip Schulman (TBI survivor) has served four UU congregations as Minister. He is a community organizer, peer leader & restorative justice activist.

Live music by Susanne Giordano, tune in 5 minutes early.

ASL interpreting by Patrick Galasso. Moderated by Merri Carlisle, Co-Chair.

Sponsor: Unitarian Universalist Church in Eugene Accessibility Task Force (ATF)

If you have any questions, would like to get on our email list, or would like to volunteer, contact us at access@uueugene.org or 541-914-1469. If you miss, ask about online recording. (Version 3)

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No New Normal: MLK, President Joe & Green Disability

Today, Monday, 18 January 2021, we celebrate Rev. Martin Luther King, Jr. In two days, we in the USA will have a brand-new President, thankfully. Every morning I listen to a lot of National Public Radio (NPR). With vaccinations increasing, NPR reported that a “new normality” may finally be possible. A few minutes later, an NPR editorialist warned us, as he should, that the surge of white supremacy must not become a “new normal.”

With all this talk about “new normality,” let me tell you something that MLK wrote and spoke about that is often neglected. MLK called for the end of what we call “normality.” This is my 44th year working for human rights of people with disabilities, so I got very interested when I first heard about this incredible historic fact, and dug in for more.

One of the best examples is that MLK brought a written speech with him in August 1963 to the famous, peaceful March on Washington. At the podium, perhaps after expertly sizing up the huge crowd on the Mall in the summer heat, he never gave that longer written speech. MLK instead improvised, partly based on previous speeches, and gave impromptu what is now known as the “I Have a Dream” speech, one of the most famous in US history.

The title of the original speech that MLK did not give was “NORMALCY — NEVER AGAIN.” This typewritten speech, complete with his corrections marked with xxxxxxx, is carefully archived at the Woodruff Library at Morehouse College in Atlanta, Georgia. Here are some of his words that are most relevant to me today:

1966: MLK marches on the south side of Chicago, through hundreds of racist counter-protestors.

“[W]e will not be beset by the nagging knowledge that this nation owes an abject apology to Lincoln; an apology for going too slow in granting equal rights to all her citizens; an apology for not pushing hard enough in bringing to reality his hopes and dreams; an apology for invoking the evil alibi that ‘this is not the time’ for the hour of freedom to strike.”

King concluded this part of his speech with words that he would often say other places and are so well put and so important today: “For we know full well that… any time is the time to do the right thing.”

We white USA-born males owe the world an apology for the bigoted folks, mainly white male “citizens,” who are leading the bankrupt ideology of White Supremacy. The best way for us to apologize will be to take action: Black Lives Matter! 

MLK frequently visited the theme of challenging normality. He even called for the creation of a “International Association for the Advancement of Creative Maladjustment.” The nonprofit human rights coalition, MindFreedom International, celebrates this vision of having a real IAACM.

Welcome President Joe, But No New Normal!

With the impending inauguration of a new president, many of us feel great relief. Wonderful. But let us learn a lesson from electing President Barack Obama, who I supported. I feel many of us progressives relaxed and let down our guard during Obama’s eight years. Obama himself encouraged progressives to be more active during his administration, and we should have listened to him. Now we know. This time, let us be on guard, prepared, engaged, and always active.

Chicago, 5 August 1966: Struck on the head by a rock thrown by a group of hecklers, Dr. Martin Luther King falls to one knee. Dr. King regained his feet and led a group of marchers.

I think back about my childhood growing up in the south side of Chicago. White Supremacist racism was rampant in that area, not far from the Nazi headquarters. At the age of ten, I was only a few miles away from where Martin Luther King was struck by a rock or brick on 5 August 1966. 

I later got out of Chicago, went to college and became a community organizer activist for people with mental or physical disabilities. In 1983, I moved to Eugene, Oregon.

I distinctly remember sitting in Monroe Park, not far from downtown Eugene, Oregon. I was reading material written by MLK. He recalled those days on the south side of Chicago, and I remember he remarked about the intense hate he saw in the eyes of white protestors. MLK said that racists in Mississippi could probably learn from Chicago racists! I especially remember, to paraphrase, that MLK said the hate was so great, his hope was that some young people would get out of the south side of Chicago, go to college, and get away from that environment. I was so startled, it felt like he was writing directly to me. 

Perhaps MLK was writing to me, in a sense. Certainly he is speaking to all of us now, that we must never again have “normality.” No normality and no new normality! Ever! Here in our household we even have a little game that you might want to play: Whenever your hear the word “normal” such as on the radio or TV, everyone sneezes or howls. The first to do so “wins.” Let us continue to be allergic to normal or new normal! Why?

Green Disability

Dr. Ellie McCance-Katz, appointed by President Trump to an important mental health position. She resigned in protest 7 January 2021.

On Jan. 7, 2021, the day after the D.C. riots when Trump supporters violently invaded the Capitol, a Trump administration leader for mental health, Elinore McCance‐Katz, M.D., Ph.D., announced her resignation. She had been Trump’s appointed assistant secretary for mental health and substance use at the Substance Abuse and Mental Health Services Administration (SAMHSA).

Yes, we ought to all applaud her resignation in protest of Trump’s rioters. Here is an excerpt from her recent statement:

“I believe that this behavior was totally unacceptable and, in my own heart, I simply am not able to continue. I believe that we are given certain life situations where we must make the difficult decisions and we get one chance to do it the right way.”

However, for the past four years, under Dr. McCance-Katz’s supervision, SAMHSA has sadly betrayed our values in the movement for empowerment of mental health consumers and psychiatric survivors. Quietly, SAMHSA has given two major grants, in 2016 and 2020, to dozens of cities and towns around the USA to support more “court-ordered” coerced mental health care of people living in their own homes out in the community. SAMHSA uses the euphemism “Assisted Outpatient Treatment” (AOT) but really the term that legal scholars use objectively is “Involuntary Outpatient Commitment” (IOC). 

Last month, I did a vlog about SAMHSA’s betrayal. You can find my video and transcript here.

We have now made a spreadsheet about grants for outpatient commitment based on SAMHSA’s own public documentation. For more than one year, I requested, unsuccessfully, that SAMHSA supply any reports about the outcome of their support. You may find our spreadsheet about SAMHSA backing of outpatient commitment, as well as a copy of my one year of email dialogue with SAMHSA here:

https://aciu.info/2021/01/17/resources-events-202101-02/

So, Dr. McCance-Katz, we appreciate your service and your resignation after the white supremacist violence, but please do not reapply for your position at SAMHSA! During your time at SAMHSA, millions were found to support IOC, but SAMHSA claimed poverty when it came to supporting the popular annual Alternatives Conference, which since 1985 has provided a way for hundreds and thousands of US mental health consumers and psychiatric survivors to work together. You can read about the history of Alternatives here:

https://www.alternatives-conference.org/our-history

SAMHSA canceled Alternatives and zeroed out funding support. Now the main annual conference is Peerpocalypse, which is sponsored by a State nonprofit here in Oregon, Mental Health & Addiction Association of Oregon. You can find more about Peerpocalypse here:

https://www.mhaoforegon.org/peerpocalypse-main-page

It is no surprise and coincidence that the federal agencies who are supposedly working for our mental well-being, instead use coercion to support “normality” and silence the voices of mental health consumers and psychiatric survivors. 

SAMHSA is not the only federal mental health agency with a bias toward the old-fashioned medical model approach, and against an empowerment-based model. My friend, psychologist Al Galves, PhD, told me:

My hypothesis is that the National Institute on Mental Health (NIMH) spends more than 80% of its $1.7 billion each year on studying the brain — neural networks, cells, molecules, neurotransmitters, other chemicals and genetics. This is a big problem because human beings don’t use our brains or our genes to live our lives. We use our minds — our thoughts, feelings (emotions), intentions and perceptions to live our lives. The mind is not the same as the brain.

I have often pondered the way so-called “normal” is hurtling itself towards the cliff of environmental catastrophe. Now I realize that humanity as a whole, with a few exceptions such as many indigenous tribes, has a “Green Disability.” That is, it is irrefutable that generally speaking modern humans are so very out of touch with nature, that we threaten our own extinction. 

There are five new brief free online videos launched from Greta Thunberg and the Dalai Lama about the role of feedback loops in amplifying the risk of climate crisis. This is why we need immediate and major action, so that seven generations ahead there will still be people and life. Please take a look at these short videos, narrated by Richard Gere:

https://feedbackloopsclimate.com/

Our consulting business, Aciu! Institute, has several events and resources for groups fighting to address “green disability.” For more information, click here:

https://aciu.info/2021/01/17/resources-events-202101-02/

Let Us Celebrate!

We ought to celebrate today and every day for the liberation movements uplifted by MLK. Yes, many of us will certainly celebrate when the current White House occupant is evicted.

But please, no normality or new normality! Whenever you hear the word “normal,” please join our household and howl or sneeze. We all enjoy our game.

Also, seriously, we need to take real, effective action for a global nonviolent revolution. That is anything but “normal.”

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Oaks Vlog #1: Mental Health, Disability & Revolution

David W. Oaks Vlog text:

Mental Health, Disability & Revolution

7 December 2020

Joe Biden’s Federal Mental Health Agencies

I love you. I am David W. Oaks. And I love you if you’re quadriplegic/tetraplegic like me. If you are a psychiatric survivor like me. Or if you’re not any of those.

My friend, the late Justin Dart, Jr. was a leader in disability. He connected mental health and physical disability. He said over and over and over:

“No forced treatment ever!”

And now I think he would say:

“Black Lives Matter!”

I love you whether you’re a relative who’s a Democrat. And I love my relatives who are Republicans. Justin worked with both.

And as Joe Biden becomes President, I encourage his administration to look at federal mental health agencies. Look at the National Institute of Mental Health (NIMH). Why don’t they look more at alternatives? Like Peer Support?

And I especially would encourage Joe Biden’s administration, and everyone in the US and the world,to look at the SAMHSA. That stands for the “Substance Abuse & Mental Health Services Administration.”

I’ve done this work for 44 years, and for decades SAMHSA was an ally. They supported empowerment, recovery, alternatives.

But under the wonderful Obama, who I support, they began funding cities for involuntary outpatient commitment. This is court-ordered outpatient mental health.

Now this has been going on quietly all over the US, for decades for thousands of Americans. Your home becomes an institution. You’re court-ordered to usually take drugs, powerful drugs.

Sadly, SAMHSA began funding several dozen sites, with millions of dollars. I’ve tried to get information from them.

They refuse.

Please help. Because SAMHSA is refusing to disclose. One year ago, I filed a Freedom of Information Act request, and they still have not told me anything about these programs, in terms of evaluating. One fact is that black people tend to be in these programs more than white people.

Right now, I chair a subcommittee, for a work group in the Oregon legislature, for the Voice & Inclusion of Oregonians with Lived Experience of the Mental Health System. We are concerned about the way alternatives to police violence, like CAHOOTS here in Eugene, Oregon, need to include the peer perspective, or else they can be a gateway to outpatient commitment.

Last week, we met with a representative of CAHOOTS, and they are interested in the peer perspective. Cities all over the US and Canada are looking at CAHOOTS as a model. Our local Affiliate of MindFreedom, MindFreedom Oregon, is looking at these issues.

Wherever you are in the world, you can create an Affiliate of MindFreedom, like MindFreedom Ghana or MindFreedom Ireland, who are doing great work. Or you can use your group’s name and simply be a Sponsor of MindFreedom by endorsing the principles.

I congratulate the National Council on Independent Living. Their Mental Health Subcommittee has adopted MindFreedom’s Shield campaign. And NCIL plans to reach hundreds of Independent Living Centers about this Shield program.

Today, the climate crisis threatens vulnerable people. COVID is related to climate crisis and the way we treat our environment. For us to live seven generations in the future, we absolutely need a revolution, the sooner the better.

But we will have one.

Please look at SAMHSA.

And Lead On!

Thank you.

I love you all.


David W. Oaks is a Revolutionary Consultant with Aciu! Institute (aciu.info). 

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