Today is 15 July 2019, and we honor the birthday of the late great Leonard Roy Frank, one of the main psychiatric survivor leaders of our modern era, and a good friend (his photo is on the left). I have blogged about Leonard before, and Mad Pride Month needs to celebrate Leonard: https://davidwoaks.com/my-friend-leonard-roy-frank
Leonard supported grassroots activism wherever you are. Our local group, MindFreedom Oregon, is a state affiliate of the human rights coalition MindFreedom International. We support calling this whole month of July, Mad Pride Month!
You probably did not hear about this call for July becoming Mad Pride Month since we have only told a few folks. It’s not too late for the rest of the month! How have you celebrated this month, perhaps accidentally? Especially, what ideas do you have for next year, July 2020, to celebrate Mad Pride? Do you support making July Mad Pride Month? If so, please contact us, there are many ways to assist this, see Mad Pride Social Media Volunteers below.
Yesterday was Bastille Day, 14 July 2019. One of the reasons July should be Mad Pride Month is that for decades, leaders in the psychiatric survivor movement have used Bastille Day to celebrate the human spirit and oppose psychiatric oppression and tyranny. One of the main activities each year is a three-day camping vigil in front of the New York State mental health agency in Albany. This vigil wrapped up yesterday. For more info about their event, their Facebook link for this vigil is here.
Here are eight ways I am celebrating Mad Pride this July:
Way to go, my good friend Rev. Phil Schulman! He was one of the keynote speakers at the annual Alternatives Conference, which has just been held in DC. Incredibly, people are searching for a video or audio recording of Phil’s speech! Accidents may happen, but I call Phil “The Movement Minister” and getting out his message is a high priority. Hopefully, someone will find a recording of Phil’s keynote. After years of leading congregations, mainly Unitarian Universalist, Phil experienced a serious head injury about a year and a half ago. His resilience, love, and leadership are so very important to our movement.
Opal Network: Here in Oregon, one of the main literary heroes was psychiatric survivor Opal Whiteley. About a decade ago, we created an informal coalition called the Opal Network which has spoken out for the empowerment of local mental health consumers and psychiatric survivors. We meet every time a month has five Tuesdays, about four times a year, so that means our next public gathering will be Tuesday, 30 July 2019. Our theme will be how the arts can support mental and emotional well-being, and psychiatric survivor liberation. Psychiatric survivor Chrissy Peirsol and I plan to host a round table at the downtown Eugene Trauma Healing Project, 11th and Charnelton, at 3:30 pm. We will have a web video Zoom call, so you can participate for free wherever you live. Interested? Please email us at: email@example.com
World’s Biggest Sneeze! A few days ago, several of us in MindFreedom Oregon gave a presentation at a stage in Community Village, as part of the celebration of the 50th Annual Oregon Country Fair (if you’re new to OCF, watch some videos of this wild hippie gathering in the woods here). During our event, we held the World’s Biggest Sneeze! Ah-ah-ah-ah-ah-ah-ah-ah-ah… CHOO! We are allergic to what is called “normality” which actually does not exist! Our household plays a simple game you can join: Whenever we hear the word “normal” on the radio, TV, or conversation, we sneeze! The first to sneeze wins. Try it!
When society is crazy & paralyzed, who are you gonna call? The Mad Pride Movement! Because of the climate crisis, 100% of humanity is clearly part of the Mad Pride Movement. We are all traumatized by the disaster. We all confront the mystery of understanding the universe. Do not wait to understand it all, act now. Those of you in the Eugene, Oregon area, please join me at an Extinction Rebellion potluck and talk on Wednesday, 31 July 2019, 6:30 pm, at our Unitarian Universalist Church. If you are outside the Eugene area, you probably live on Earth and so can take part in this nonviolent Extinction Revolution wherever you are. The Mad Pride Movement celebrates your creative way of thinking & acting. We are the new PC: Positively Crazy!
Mad Pride Social Media Volunteers: To connect with those of you who are curious or supportive of a Mad Pride Month, we at MindFreedom Oregon are creating several social media places. If you would like to assist, and perhaps co-moderate, contact firstname.lastname@example.org. Social media include: Reddit, Twitter, Linkedin, Instagram, Facebook.
Remember Creative Maladjustment Week! For more than a decade, Rev. Martin Luther King, Jr. commented about creative maladjustment over and over. He even said the world was in dire need of an “International Association for the Advancement of Creative Maladjustment.” MindFreedom International produced a guide to celebrate being maladjusted every July 7-14, Creative Maladjustment Week! And of course, this is near the middle of July, now Mad Pride Month.
A State Senator in Oregon Wants to Hear from Psychiatric Survivors, Mental Health Consumers, and Our Allies. My friend, State Senator Floyd Prozanski, pushed for two mental health bills this past session in the Salem, Oregon legislature. We Oregon psychiatric survivors/mental health consumers heard about these proposals and we expressed our deep concern. Thankfully, both bills failed this past session which just ended in Mad Pride Month, July! Yay! Now, I promised Sen. Prozanski that we would provided him with civil input about human rights & choice in mental health. Please email him at: Sen.FloydProzanski@oregonlegislature.gov. Please copy your comments to: email@example.com
Something for Everyone! I know Mad Pride may not be everyone’s cup of tea. I figured out that if a couple conceives today, their baby might be born on 15 April, tax day. This would seem to be a great Normal Shame Day, so that if anyone rejects Mad Pride Day they can always be part of that. If your baby is born on Normal Shame Day, do not worry, this is definitely not normal and your child will be a hero of the Mad Pride Movement!
Your ideas, feedback, jeers, cheers, suggestions, support, strangeness are all welcome in the comment area below, or on my Facebook page. Thanks!
After a year-and-a-half of preparation, I am finally about to officially launch my consulting business, Aciu Institute. More about that soon.
Memorizing 112 Cards
Readers of my blog know that I have been working on my memory, in order to prepare for launching my consulting business. Rather than just memorize the order of a deck of playing cards, I have been using a double deck. My home care worker shuffles these decks, and I memorize the order.
When you open a typical Bicycle deck of playing cards, there are of course two jokers (black-and-white & color). There are also a couple of promotional cards. Now I include all of these cards. So yesterday, I memorized a total of 112 cards, and repeated the order back blindfolded & perfectly. This is the 15th time I have memorized a double deck, but the first time I have memorized so many.
Like me, perhaps you have been very interested in the new group started in London called Extinction Rebellion. They have used nonviolent civil disobedience to help activate the globe about the climate emergency.
Recently, this past Friday, 24 May 2019, we held a People’s Assembly for Extinction Rebellion here in Eugene, Oregon’s Kesey Square. In my small group, I focused on a theme from Extinction Rebellion: Regenerative Culture.
We in the disability and mental health activism movements have long ago promoted peer mutual support for our wellbeing despite trauma. Now, I would argue that 100% of the public are in the big tent of our movement, because of the climate crisis. Everyone is physically disabled by this emergency. Everyone is traumatized with grief, perhaps so deeply they might not even know it. Yet.
July: Mad Pride Month
One of the clients Aciu Institute is supporting is the local affiliate of MindFreedom International: MindFreedom Oregon. Our regular monthly grassroots meeting will be a week from this Friday, the first Friday of June, 7 June 2019.
Local psychiatric survivor activists TC Dumas & Christina Peirsol will join me in calling for a number of activities during July 2019: Creative Maladjustment Week, speaking with Patch Adams, MD at the 50th Anniversary at the Oregon Country Fair, and finally a free public gathering for the Opal Network.
I believe I will call for us to declare every July from now on to be Mad Pride Month. Sound good? Your feedback and comments are welcome.
If you are interested in attending our MindFreedom Oregon meeting and helping to plan these fun activities, email us at firstname.lastname@example.org.
The name of my consulting business is Aciu Institute. “Ačiū” is an ancient word in Lithuanian meaning “Thanks.” Thank you, everyone, for supporting me, my rehab, and the launch of this business. Let us have the nonviolent global revolution we need, now! If not now, then when the heck?
One of my very best friends for many years is the creative, loving, wise, funny Phil Schulman. Phil is a minister who has led several Unitarian Universalist congregations. Phil has been such a prominent, positive leader in so many movement gatherings of mental health consumers and psychiatric survivors that I affectionately call him “The Mad Movement Minister”!
In November 2017, while biking from home to an Alcoholics Anonymous meeting (Phil has been clean and sober for many decades) a truck hit him. Phil suffered a major traumatic brain injury (TBI). He spent a long time in a coma. Since then he has devoted much of his time to recovery in a way that models values of our movement. He has shown faith, humanity, empowerment, community, humor, love, peer support, spirituality, wisdom and so much more.
Recently, I heard a sermon Phil gave about a year after his accident, speaking about commercialism during the Christmas 2018 season. His wisdom and witty love for life shine through his impaired speech. Or perhaps his disabled voice underscores his message, because he is living our values! You can access and listen to this sermon here: https://www.dropbox.com/s/5vknvi3gk4018zg/Phil_Christmas_sermon18.wav
Last week I had the pleasure and honor of nominating Phil as a speaker in one of the main gatherings of our movement.
Below you can read some of what I wrote:
I have been close friends with Phil for several decades. I myself have been an activist in the mental health consumer / survivor movement for more than four decades, including co-founder of MindFreedom. Since 2012, because of disabilities, I am semi-retired. In all my career, I would consider Phil to be one of the greatest treasures in our movement. I give him my very highest recommendation for your keynoter.
Phil became a minister and has served as a church leader in several congregations in several states. He is also an advocate in the peer “lived experience” consumer / survivor movement. Phil has actively participated in many Alternatives conferences, NARPA conferences, etc. In fact, I and a few others refer to Phil affectionately as “the mad movement minister.” As I noted, Phil has a lived experience with several mental distresses in his past. He has been clean and sober for many decades, regularly attending AA.
It was riding from home on his bike to an Alcoholics Anonyomous meeting in Florida back in November 2017, that Phil, as I say, “re-established his movement credentials.” A truck struck Phil as he rode his bike that night, throwing him into a coma with extreme and severe head injuries. Phil also had a large number of challenging physical impairments.
Phil has dedicated the last year-and-a-half to showing us all the value of our movement beliefs. Phil has activated a network of supportive community leaders. He has engaged in many hours of extensive rehab regularly. He has applied his extensive wisdom of spiritual growth.
Let me give one example. Last year, he was one of the speakers in the nationally-popular New York Association of Psychiatric Rehabilitation Services (NYAPRS) conference. Even though because of his TBI Phil speaks differently, even though he has several other extreme physical challenges… or perhaps partly because he has all these disabilities, his speech was very popular, powerful, moving and helpful. I have personally listened to a sermon he gave not too long ago, and his wit, humor, wisdom shines through as it did before his injury, with dozens of sermons. Below is the text from his NYAPRS speech, and you will find some of his bio here:
November 6th, my bicycle and I were struck by a ½ ton Dodge Ram
truck. Thanks to a prompt emergency medical response and surgery, I
did not die. The extent of brain damage was unknown. There was
uncertainty if I would walk or talk again. Ten months later, here I am.
I am really happy to be with you. I have worked hard to regain abilities,
including my speech.
A member at the clubhouse I attend, told me that he loves my NJ accent.
I said “What are you talking about? I don’t have a NJ accent! I have a
brain injury accent.” Ok sometimes my Jersey accent comes out a little.
I am hoping that in the future I’ll be able to say “Sometimes my head
injury accent comes out a little.”
Thank you for being here today! There are times in life when we really
appreciate people showing up. Like the first time we do something,
when we become ill or injured, after the death of a loved one, … it can
mean so much to have companionship. True?
Many people reached me out to me after learning of my accident. I was
so moved to hear that communities all over the country were praying for
me. To this day, one line posts on FB lets me know that friends are still
caring and following my progress.
Support has helped me to achieve spectacular results in recovery.
Decades in wellness and recovery communities prepared me. Lessons
and tools from past trauma have helped me too!
For example, I was seventeen when a close friend killed himself. I was
thinking about doing the same. I saw so much injustice, and believed
myself to be indelibly flawed and unable to make a difference. I didn’t
see a reason to continue living. I yelled at G*d “What do you want from
me?” I instantly received an answer; 3 words “Just show up,” and a
memory of a friend listening to me compassionately. I was defeated in
my argument with G*d. I knew that if I would follow these instruction,
it would make a difference.
After a few more years of substance abuse, in another conversation with
G*d, I swore off toxins. I started swimming daily hoping that I could
heal the damage I had done. Over the next decade I found various
communities that offered gifts for recovery.
At age 25 I began seminary, and was introduced to a form of peer
counseling that helped me to understand individual trauma in a context
of societal oppression. It taught me to feel pain and allow tears in order
to release the lingering effects of trauma.
At 29 I was given a spot in a very expensive and lengthy outpatient
Codependency Treatment Program. The director said that I was manic
depressive. He told me that if I needed to take lithium or leave the
program. As soon as I completed the 8 week program, I stop taking the
lithium. I had connection with this human rights movement, with others
who were resisting coercive treatment. My peer counseling practice
became critically important to me.
I got a job as a counselor on a hospital addiction unit. My peer
counseling teacher was hired to provide training, and our staff began
practicing peer support. The head nurse began asking me to visit
patients at about the 18 th day of treatment when they were asking for
more pain medication. Patients would share with me their inner pain.
They would usually cry. Although many refer to crying as breaking
down, it consistently aided break throughs. The number of requests for
pain medication declined.
Then a new medical director put all patients on antabuse. I objected and
was “laid off” two weeks later. This is one of many times I paid a price
for how my beliefs put me in conflict with our mental health system.
My most traumatic experience of mental health oppression came at the
hands of my church. The director of the “Ministerial Fellowship
Committee” described its purpose as being gatekeeper for our
denomination, weeding out those not psychologically fit for the
ministry.” At 31, after nearly seven years of education and work, I was
the weed removed.
I have needed a lot of support to heal my alienation from institutions that
I judged as toxic. In particular I felt at odds with the psychiatric
pharmaceutical industrial complex. I believe that the mental health
system diverts attention away from social injustice, oppression and the
deeper causes of harm upon people. I rejected the labeling and
mistreatment of people as mentally ill. I saw it as enforcing social
structures that keep control of resources in the hands of the richest 1%.
In 93 I met David Oaks and began working at the “Clearinghouse for
Human rights in Psychiatry.” For 25 years David has believed in me
and challenged me to reach higher. He has referred to me as Minister to
In 98, I was hired to start and direct the “Crisis Alternatives Program” in
Essex Co NY. It was one of the first respite programs- funded to reduce
the amount of force and violence in the county’s mh crisis response. My
philosophy was very simple: 1- assume that each person asking for our
help was experiencing some degree of overwhelm and conflict regarding
something that had happened to them. 2- listen, provide people with
high quality empathy 3- Remember that people are the best experts on
what they value and want 4- Do not interfere with their choice of
support services. Let them figure out for themselves how they wanted
to address their conflicts. 5- believe in people’s capacity to recover.
These values have helped me in my recovering from the recent trauma to
my brain and body. The experience and tools I’ve gained in this
movement have been instrumental in my success. Now come with me
through that more recent journey.
My brother Michael had invited me to participate in the final kayak
expedition for his book. We planned to leave early Tuesday morning.
On Monday I texted him that I would arrive at his home by about 9pm.
When my housemate came home at 6, he saw my car in the driveway,
and found my cell phone inside charging. He correctly assumed I had
gone out on my bicycle and incorrectly assumed I would be back soon.
A few days later, I regained consciousness in the hospital Intensive care
unit. I woke gently as if from a night’s sleep. Looking down I saw my
badly broken body. I felt achy all over.
I didn’t remember the accident. I remembered setting out on my bike. I
knew I didn’t reach my destination. I put two and two together.
Surprisingly I felt somewhat calm. When the pain medication wore off,
I experienced dread. I was lonely and pleased when staff entered my
Something seemed strange. Was this a movie or a dream? I had the
sense of being both present and in another realm. There was silence
from me? I realized that I couldn’t speak.
I figured it was a result of the accident, and expected that it would soon
wear off. My acceptance wore off more quickly. I needed to let my
brother and others know where I was. I wanted to scream, “I’ve got
something I need to tell you!” Staff understood only that I was
Fortunately, my brother soon appeared in my room. The police have
contacted him. My relief was enormous! There were tears in both of our
eyes. The relief was short-lived. I became frustrated with my inability to
communicate and connect with him. Noise was hurting my head. I was
relieved when he left for the quiet that returned.
I started communicating with staff by using expressions, sounds and
soon some garbled words. I slept much of the time, and could tell that
my condition was improving.
My brother’s next visit went better too. He says that my first word was
Although relatively peaceful, I felt a strange disorientation. From my
room, I couldn’t see the street or the sky. I saw only another building
with a bright neon sign. I watched it become dark and light and dark
again. It was like time lapse photography. I couldn’t tell how many days
went by. I left my room only one time in ten days, a trip down
windowless hallways to an operating room. I was lost in space.
Disconnected from nature, blurry headed from my trauma and the meds,
I started seeing fantastic images. Have you started dreaming before you
fell asleep? It was something like that. I kept trying to look at these
things I was seeing. Each time I opened my eyes, the images would
disappear. I saw strange things with my eyes open too; floating
electrons, and orbs of light. Fortunately weird doesn’t faze me! I was
curious and amused by these altered states.
The noises were more troubling. Beeps, alarms and even voices hurt my
head. I was hearing doctors and nurses talking in the hall outside my
room. They seemed to be talking about me repeatedly. There were also
public service announcements and advertisement for hospital programs
being broadcast over a public address system. I wasn’t quite sure what
was real. It reminded me of a scene from Alice in Wonderland.
Again, I correctly assumed that it was a result of my accident, and would
soon be over.
A speech specialist visited me. She said that I was going to get better,
and that it would take a long time. She said that singing would help me
recover my speech. She asked if I could sing “twinkle twinkle little
star.” and “Happy Birthday.” I couldn’t believe that I could barely
remember the tune. For the next month I sung all day long.
Someone brought me a “letter board” so that I could point and spell. I
didn’t have much success. Writing on paper didn’t work much better.
The problem was that I was still thinking big words and long complex
sentences. Before I could get my thoughts out, I would forget what I
wanted to communicate.
Staff seemed to want to get in and out of the room quickly. Some times
they caused me physical pain. I couldn’t quickly find words to
The voice of childhood trauma was crying inside me: “No more! I can’t
take any more!” My actual emotional expression was cranky and
complaining. Hurting and fatigued, I feared alienating my helpers. I
knew that if I didn’t make a change, things would not go well for me.
Fortunately help was on the way. My former partner Huyen had reached
out from Texas to contact my local people in Florida. She asked the
Vegan meetup community to bring me healthy food. Joyce had attended
Nonviolent Communication (NVC) classes in my home brought me miso and other vegan meals. Her
food was manna from heaven. Her visit was an island of joy in a sea of
That night I was writhing in pain again. I was tired emotionally and
physically. “This is horrible!”, I thought. “What have I done?! I can’t
handle this!” Alone and in despair, I longed for support and imagined
there was none to be had. I felt hopelessness overtaking me.
Then one thought caused a shift in me. I remembered Joyce telling me
how Huyen had reached her through the internet to advocate and care for
me. Recalling this, I remembered that I was loved. I felt warmth, relief
and ease in my body. Although still in pain, I could be still. Sleep came
Huyen and I had been a couple for 7 years. I recent years I have seen
her Facebook posts; pictures of good times with her boyfriend Mark.
That she still cared and acted boldly was powerful.
Huyen is a physician. She was able to inform, guide and advocate for me
effectively. She has been a star player on the incredible support team
In the beginning I perceived myself as alone in facing terrible pain and
loss. My perception yielded to a sweeter reality. Love began pouring
in, cards, prayers and emails from far and wide. Eventually there were
calls, meals, rides, generous gifts to support my medical costs.
Love lifted my spirit. I began thinking, acting and responding more
positively and effectively. I became determined to recover. Staff
responded and treated me with warmth. Resources fell in my lap.
The support and the love I received helped me to keep on keeping on
through months of pain. With spirits lifted, I found the stamina to do
about 4 hours of therapeutic activity most days; physical therapy, weight lifting,
swimming, gentle stretching. I’ve received cranial sacral and Eye Movement Desensitization and Reprocessing (EMDR) therapies. I’ve participated in a fitness program for people with mental
and physical disabilities.
Although I have worked hard, I didn’t make my bones heal. Something
larger than me did that. We understand and call it differently; the
Universe, life, spirit, energy, nature, G*d. I thank G*d for the doctors,
nurses, physical therapists, agencies, advocates, friends and family that
have helped create miracles for me. I stand in humility and awe before
the web or life of which we are part, the Great Mystery of unfolding
existence. I send out love to all my relations, my ancestors and
generations to come. I step into this moment, alive, awake and grateful
for new opportunities.
Those of you in the Eugene, Oregon area can be in for a treat:
John Bola, PhD, will be at our free monthly meeting of MindFreedom Oregon, our local affiliate. Please spread the word to folks you know in Eugene!
This will be an informal chance to chat with one of the main champions of researching change in the mental health system. As a young person, John experienced human rights violations in the mental health system, including electroshock.
He lived here in Eugene for a few years, but mainly has been working and studying in California and even China. He got his PhD and has co-authored many peer-reviewed scientific articles to improve mental health care.
When: Friday, 1 March 2019, 2 PM – 3:30 PM
Where: Trauma Healing Project, 1100 Charnelton Street, Eugene, Oregon. Space is limited, arrive early.
Parking: If spots beyond building are full, there are meters on 11th, and free parking on 12th going west.
We will start the meeting with John, and then have a chance to chat about MindFreedom Oregon activities. Activist Chrissy Peirsol will join me for sure.
More information about John Bola:
John Bola is a recently retired Social Work professor (City University of Hong Kong). He worked with Loren Mosher on the two-year outcomes from Soteria and published several papers challenging the unnecessary and excessive prescription on anti-psychotic drugs. He is also a psychiatric survivor: Spiritual experiences, electroshock (ECT) and anti-psychotic treatments.
I do some consulting for the independent nonprofit, MindFreedom International, which is one of the main coalitions focusing on human rights in mental health.
Here are four positive news items about MFI:
1. MindFreedom will be doing another free webinar later this Summer 2018, on choice in mental health.
On August 19, 2018, MindFreedom will be holding a new free online webinar about empowering options for people needing mental and emotional support. The title of the webinar: “Voices for Choices: Organizing for Alternatives to Forced Psychiatric Treatment.”
Thanks to support from the Foundation for Excellence in Mental Health Care, three leaders in the field of providing alternatives to mainstream mental health, will be offering this opportunity. For more information and to register, go here. Act soon, attendance is limited and based on previous webinars, this will be popular.
2. MindFreedom is stronger than ever.
It has been more than five years since I experienced a major accident and severe ongoing disabilities, requiring my retirement after 25 years as MFI’s executive director. As well as the above grant from the Foundation, MFI received an anonymous major donation, and many members have continued to support this important effort.
I am glad to report that MindFreedom International is doing very well. However, there has not been a replacement executive director. Until now. MFI is now announcing a search for a new executive director. This will no doubt lead to better member services, campaigns, and online information, which many people supportive of human rights in mental health have hoped for. Congratulations!
Please note that MindFreedom website currently lists the deadline for the job application as July 31, 2018. So unless this is extended, it is too late to apply.
For more info, see the MindFreedom website here. (Please note that I am not in any way personally involved with the search.)
I have very much enjoyed providing some consulting with MFI through my new business, Aciu Institute. We have helped do several surveys, for example. We look forward to future support for MFI.
3. You can now view MindFreedom’s last webinar, on human rights in mental health, free.
At the beginning of this Summer, 2018, two other psychiatric survivors and I presented a free MFI online gathering about winning campaigns for choice in mental health. You can now view a video recording for free on the web, here.
Above right is a photo of work I did years ago in Oslo, Norway with one of the oldest groups in our movement: We Shall Overcome. We constructed a huge prop hypodermic needle and reaches hundreds in Oslo about choice in mental health. No forced psychiatric drugging!
4. For a limited time, interested activists can apply to benefit from mentorship.
As a follow-up to their webinar MindFreedom International gave about human rights in mental health, about 20 folks can apply to become mentorees. Each will work with a mentor to develop written plans for a human rights in mental health campaign. Because space is limited, those interested should contact MFI soon. Email to: email@example.com
Go MindFreedom International, go! Let us help lead this revolution!
I am glad to see that MindFreedom International, despite many struggles related to the incredible oppression in the mental health system, and also my accident, is doing so well. Listening to a lot of folks, I know there is hope for a better online presence, member services, etc. But generally these hopes are very constructively and lovingly offered.
Let us all work together for MindFreedom International and the revolution we need in mental health. With the climate crisis, the lock so-called “normality” has on our culture has become a central emergency, globally!
Thankfully, the USA culture is discussing more than ever the hidden oppression of sexual assault against women. However, men who have had their lives disrupted by unwanted or abusive sexual experiences might not have felt the same level of support or not known where to turn. A local respected nonprofit here in Eugene, Oregon, Sexual Assault Support Services, has mainly worked with female survivors, but they have a resource for male survivors.
Many group meetings for counseling have a formal expectation for attending, but this meetup is more informal, and participants may decide to drop in at the last minute, and may attend any of the weekly gatherings or take a break. Their choice. The group has two experienced, thoughtful and supportive counselors to help the peer support be empowered but safe.
Below is from their flyer, the group is active now, January 2018. If you want to double check that the group is being held each week, check their website.
From the SASS flyer about the Eugene, Oregon weekly men’s meetup:
You are invited to be a part of a free & confidential mentoring group lead by trained facilitators who work to strategize with, & empower men who have experienced unwanted sexual contact at any point in their life. Come, be of support to others & find support for yourself!
This group is for self-identified males 18+
When: Thursday’s 4:30 to 6:00 PM
Where: 591 West 19th Ave. Eugene (Corner of 19th & Jefferson), Oregon. Call with questions, or just drop in! Door locks at 4:35 as no late arrivals allowed.
[To repeat, SASS is the respected sponsor of this free weekly meetup. MindFreedom Oregon and I are not organizers, but are strong endorsers and you can find our listing of this event on fb here: https://www.facebook.com/events/354136108328973/ ]
A US Senate committee is supposed to approve a controversial Trump appointee this Tuesday, 1 August 2017. You may not have heard about this in mainstream media, or even the alternative media, though I have been covering this topic for months!
The approval ceremony is scheduled for streaming on the US Senate HELP (Health Education Labor Pensions) Committee website. According to what I have heard, this HELP Committee will genuflect to power, and sign off on the appointment of psychiatrist Dr. Ellie McCance-Katz as the first Assistant Secretary of Substance Abuse and Mental Health Services Administration (SAMHSA), a powerful federal agency with a budget close to four billion dollars annually.
This new “Mental Health Czar,” as it is popularly known, will preside over a SAMHSA that is supposed to be far more friendly to the mental health industry. For example, several leaders have said that SAMHSA will not fund the popular Alternatives Conference after August 2017 in Boston. For more than three decades, this annual gathering has brought together countless USA psychiatric survivors and mental health consumers who lead hundreds of empowering peer recovery programs.
For the past few years, SAMHSA has even begun to fund the support of Involuntary Outpatient Commitment, which often translates into court-ordered coercive psychiatric drugging of people living in their own homes, peacefully. All the groups I know led by people who have been through the mental health system strongly oppose IOC.
I just heard from leaders at the National Council on Independent Living (NCIL) that this apparently-automatic approval can be watched this Tuesday, 1 August 2017; the link will go live about 15 minutes before the hearing, set for 2:30 EST:
2. Send a web note to each Senator, it takes just a moment: “I oppose the Trump nomination for the new, powerful mental health position, Assistant Secretary to SAMSHA. The US Senate HELP Committee is supposed to ask psychiatrist Dr. Ellie McCance-Katz questions, here are nine questions:
May 15, 2017: I am OK, back at Mad Swan, what we call our home. Thanks all!
In Lithuanian, the word for “thanks” is aciu! So:
Two folks to single out for appreciation:
Thanks of course to Debra, my amazing wife. Near the bottom of my blog entry are two very brief videos by her, just after the operation. In both videos I am mute. My being silent for a while may bring great pleasure to some beloved viewers.
Also, thanks to one of my very helpful respiratory therapists (RT) Aaron Maddron, see his photo here by Eric Jacobson, published in East Coast Muscle Magazine. I appreciate your positive support and advice, Aaron, my friend, I hope it is OK to post this public info. Some fans are wondering what happened to you after winning body building championships.
I can assure folks that Mr. Maddron is now an effective healer.
Thanks, respect and dignity for all.
Briefly, Let Us Start At the Beginning of This Past Week:
Exactly one week ago, on Monday morning, 8 May 2017, I experienced some significant health difficulties including nausea & radiating pain in my back. My brilliant loving and amazing wife, Debra, encouraged me to consult with Dr. Hurtado, my primary care physician. Based on my health experiences this past year and a recent visit with him, he encouraged me to go to an emergency room.
I have taken ambulances to various ER’s several times and knew the drill: This meant that we phoned 911 and took an ambulance to an ER room. I did not have time to inform a lot of folks, please forgive me if you did not know. Also, because of confidentiality laws, my wonderful team of employees could not transmit info about me. Everyone has permission to share this message, and I asked the wonderful webmaster, Jeffrey Bousquet, with Aciu Instititute to add this to my personal blog. (Thanks, Jeff!)
After three days, I felt so much better, I sent out a message that this blog is based on. And today I am at home. Over this past week I experienced the following:
My sixth ambulance trip, I think, in about a year.
I chose this time to go back to Riverbend PeaceHealth, the site of my original ER arrival four years and five months ago when I fell in December 2012, and broke my spine.
My diagnosis this time: Emergency pancreatitis.
My fifth operation in five years.
A glimpse at some past trauma while chatting with great caretakers.
I got to play with many caretakers and friends our newest games, Wacco, free, face-to-face, question-oriented. I was able to listen and find out a bunch about what they were Nuts4, or nuts for.
Not eating for three days.
(Oops did I say briefly?)
Here are some videos from just after the operation:
By my beloved Debra, only 17 seconds, I am still unconscious:
A 25 second video by Debra after I wake up post-op, only 25 seconds, I am still mute, but my eyes are open. Note the devices that I am wearing that would normally be called restraints. Normal? Hoooowwwwl!:
Because a bunch of tubes were still in my nose and throat and gut, I did not stop the use of “restraints.” My restraints involved post-op, not mental health. The topic in general can be very complex. I admire Martin Luther King warning us about the paralysis of analysis. As a trauma survivor, I can advise River Bend on some possible improvements on this process.
After about 40 years working for human rights in mental health, there is a very simple way for you to address the issue of “restraints.” I talk with my hands & arms so there was a risk of pulling the tubes out. But do not worry, in a way they are not real restraints if I can have them removed. Complex? Or is it.
What? Oaks in Restraints?
My main purpose here is to thank people for this past week. However, I do need to address more the topic of involuntary mental health restraints including chemical restraints.
You see, President Trump nominated an individual to a key new “mental health czar” position who very much supports involuntary outpatient psychiatric treatment. The US Senate will ask her questions during the approval process, and so now is the time to reach all US Senators about this topic, because their approval of her nomination is required. Mad In America re-published my blog about this topic, and quite a lot of readers have been interested, https://www.madinamerica.com/2017/04/trump-appoints-leader-campaigned-involuntary-outpatient-drugging/
I hope everyone who reads this provides feedback via my blog or Mad In America. While I have difficulty getting all messages, I also try to keep up with feedback via LinkedIn, Facebook, Twitter, etc. I am an First Amendment fanatic! What are your views and questions? Hey, what is this, Russia?
Russia, by the way, is famous for doing a lot of involuntary psychiatric drugging. It is easier somehow for us Americans to see such human rights violations in another country. Same drug, needle just as sharp, different perspective. Gee, our President Trump seems to ignore some negativity over in Russia. Same President who has recently nominated Elinore F. McCance-Katz of Rhode Island for our new “mental health czar.”
The topic of restraints, physical tie-downs after surgery versus mental health restraints including psychiatric drug injections, appears to be very complex.
Let Us Get Real Simple Here:
I agree with Michelle Funk who speaks for the World Health Organization (WHO), based in Geneva, Switzerland, connected to the United Nations. Thanks WHO!
May is Mental Health Month here in the USA. Here is Michelle’s May 4, 2017 tweet:
If you view my retweet comment about this the same day, just a few weeks ago, to help get out this extremely important news, WHO calls for end to use of solitary confinement and restraints in mental health, you see I agree with her and the WHO.
“I really enjoyed being an ‘expert consultant’ for this set of pilot modules from the World Health Organization with the UN.”
As a consultant expert during 2016 for the World Health Organization on human rights in mental health, I was one of those with personal lived experience of real restraints. Not the tie-down types. The sharp end of the needle kind. I am a survivor of involuntary psychiatric drug injections as a college student back in the 1970’s. I graduated Harvard despite these experiences 40 years ago this year.
The topics of my psychiatric survivor story, restraints, and a lot more may seem very complex but I am trying to be brief here. Ha-ha!
Simply put, WHO calls for ending involuntary restraints in mental health now. I agree. Note that these restraints include chemical ones.
More to come, but to learn about ending restraints in mental health, here is a free PDF link to one of the new 15 WHO documents that I advised on, Strategies to end the use of seclusion, restraint and other coercive practices: Training to act, unite and empower for mental health (Pilot Version):
I was mute for a few hours, I realized that my brother’s invention of a letter board that I used on the same ICU four years ago would have really, really come in handy. Laminate and sell that puppy, Tony!
During my recovery after my surgery, I asked Debra’s help in getting a chaplain and we met a couple including one from my Unitarian Universalist Church in Eugene, Kimberly. Thanks Kim! Visit our Facebook group that brings together more than one hundred of us: UU Mental Health Justice.
I had time to reflect there inside Riverbend PeaceHealth Hospital in Springfield, Oregon, city of the Simpsons this past week. Time to rest with more simplicity. Thanks for helping everyone who produced this blog entry, much of it written a few days ago including this line: “Debra has provided so much support and love–she blows a kiss. Ian is typing this.”
Debra thanks for being my amazing wife and true love all these decades, once more you are saving me!
Everybody who sent well wishes
All messages including phone calls were very much appreciated, thanks
Those of you who were supportive even though we were unable to inform all who would like to know such things. (May I suggest getting to my Twitter account and adding yourself as what is called “follower.” In the future I will try to tweet very significant news.)
Thanks again to Aaron!
And thanks to Patch Adams, MD, even though you were not in the room, and even though you do not go on the Internet, and even though this time I did not phone you up my dear friend, AAAAAAAHHH-CHOOOOOOOOOOOOOOOOOOO!!!!!!!!!!!!!!!!!